Understanding the Maternal Perspective of Neonatal Intraventricular Hemorrhage

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Material Information

Title:
Understanding the Maternal Perspective of Neonatal Intraventricular Hemorrhage
Physical Description:
1 online resource (245 p.)
Language:
english
Creator:
MacGregor, Teresa L.
Publisher:
University of Florida
Place of Publication:
Gainesville, Fla.
Publication Date:

Thesis/Dissertation Information

Degree:
Doctorate ( Ph.D.)
Degree Grantor:
University of Florida
Degree Disciplines:
Nursing Sciences, Nursing
Committee Chair:
Lutz, Barbara J
Committee Members:
Pieper, Pamela
Young, Mary E
Gravlee, Clarence C.

Subjects

Subjects / Keywords:
caregiving -- ivh -- maternal -- neonatal
Nursing -- Dissertations, Academic -- UF
Genre:
Nursing Sciences thesis, Ph.D.
Electronic Thesis or Dissertation
bibliography   ( marcgt )
theses   ( marcgt )
government publication (state, provincial, terriorial, dependent)   ( marcgt )

Notes

Abstract:
A premature birth is an unexpected event forcing parents to immediately make life altering decisions that will affect not only themselves, but entire families.  Parents are often ill-prepared to face the foreign environment of the neonatal intensive care unit (NICU).  When an infant experiences a complication, such as intraventricular hemorrhage (IVH), the situation becomes more complex.  Infants often require elaborate medical support and ongoing rehabilitation upon discharge.  Neonatal staff members frequently express concerns that families do not really understand the complexity of the situation.  Therefore, the purpose of this study was to explore the process of becoming a mother to an infant who has experienced intraventricular hemorrhage (IVH) following preterm birth with the intent of understanding the meaning mothers attribute to IVH and how meaning is developed in order to construct a substantive theory that explains this complex process.  Twenty-one interviews were conducted in this grounded theory study.  Grounded theory is an interpretative research method that focuses on understanding meaning of phenomena as they are perceived and experienced by participants.  Open-ended, loosely structured interview questions allowed discovery of maternal perceptions regarding the phenomena of IVH.  Data were analyzed using dimensional analysis, a comparative analytic strategy designed specifically for use with narrative texts in grounded theory studies. An explanatory model was developed that illustrates reframing motherhood within the context of preterm birth complicated by IVH.  Under conditions of infant constitution, maternal attributes, and unexpected course, mothers discovered what it meant to be a mother of an infant with IVH.  Gathering information, interpreting messages, and making sense were primary processes used.  Mothers began to understand their lives and their babies lives would be different than anticipated.  Through this process, mothers acknowledged a new uncertain life trajectory and developed the belief that they had power to influence the situation.  The findings of this research can be used by providers to understand how mothers develop their beliefs about neonatal IVH.  This will allow development of family-centered treatment plans that incorporate maternal beliefs.  This research adds to the body of neonatal research as there are no studies addressing maternal understanding of neonatal IVH.
General Note:
In the series University of Florida Digital Collections.
General Note:
Includes vita.
Bibliography:
Includes bibliographical references.
Source of Description:
Description based on online resource; title from PDF title page.
Source of Description:
This bibliographic record is available under the Creative Commons CC0 public domain dedication. The University of Florida Libraries, as creator of this bibliographic record, has waived all rights to it worldwide under copyright law, including all related and neighboring rights, to the extent allowed by law.
Thesis:
Thesis (Ph.D.)--University of Florida, 2012.
Local:
Adviser: Lutz, Barbara J.
Electronic Access:
RESTRICTED TO UF STUDENTS, STAFF, FACULTY, AND ON-CAMPUS USE UNTIL 2014-12-31
Statement of Responsibility:
by Teresa L. MacGregor.

Record Information

Source Institution:
UFRGP
Rights Management:
Applicable rights reserved.
Classification:
lcc - LD1780 2012
System ID:
UFE0044875:00001