Title: CARD newsletter
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Permanent Link: http://ufdc.ufl.edu/UF00091723/00006
 Material Information
Title: CARD newsletter
Physical Description: Serial
Language: English
Creator: Center for Autism and Related Disabilities, Department of Pediatrics, College of Medicine - Jacksonville, University of Florida
Publisher: Center for Autism and Related Disabilities, Department of Pediatrics, College of Medicine - Jacksonville, University of Florida
Place of Publication: Jacksonville, Fla.
Publication Date: Summer 2010
 Record Information
Bibliographic ID: UF00091723
Volume ID: VID00006
Source Institution: University of Florida
Holding Location: University of Florida
Rights Management: All rights reserved by the source institution and holding location.

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Vol. 2, Issue 4
Summer 2010
Center for Autism and Related Disabilities Jacksonville


NEWSLETTER
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CARD Seasonal Events
Continue to Engage Families
Since CARD moved locations to
e UF Developmental Pediatric one
the most enjoyable features of the
!w building for staff has been
lough space to put on large sea-
nal events like our Winter and
,ring festivals.
Hosting these events provides
miles of children with disabilities
e opportunity to publically celebrate
e holidays, take photos with classic
laracters, and engage in craft activi-
is in an accepting, patient environ-
ent.
Seasonal events often provide snac
id drinks, social activities like tale
lows, and access to community service
oviders.
Staff have been very pleased with atte
nce to these events and we enjoy t
portunity to interact with families on
ore personal and social level.
All festival events are adver
lead of time on the CARD
eb-calendar and the weekly
ARD update email.
To sign up for our
ailing lists simply
nail your name to:
thony.Rhodes@iax.ufl.edu


Jun 05 Emergency Preparedness
Conference for Persons with
Disabilities
Jun 16 CARD Workshop: National
Standards Report
Jun 17 CARD Workshops: Best Edu.
Practices for Serving
Students with Autism
Jun 22 Resumes, Applications,
& Interviews Workshop
July 27 CARD Constituency Board
Meeting
Jan 13 18th Annual CARD Conference



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CARD's Mission
o educate and empower individuals and families throughout the lifespan
y providing support, assistance, and awareness within the community;
rith the goal of optimizing the potential of all individuals with autism and
elated disabilities.

:i.ufl.edu/nediatrics/autism (904) 633-0760


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Dear Constituents,
SWe are very grateful to the Florida State Legislature and Governor Crist for maintaining CARD funding statewide
for the 2010-2011 fiscal year. This will allow us to maintain our present staffing and to continue to provide impor-
S. tant services and programs in our community. While we are elated that we can continue to serve, we realize that
our center must make some changes to our program and our services in the year ahead. At this time, we are looking
towards the future and considering the following questions carefully as we make these changes to our program: (1)
What are the present needs of our individuals with autism? Our families? Our educational professionals, service
providers, and community members? (2) How do we serve an increasing number of people with limited staff and
funding for services; (3) How should CARD operate in light of advances in technology, changes in insurance pro-
viders, and local resources?
In order to answer these questions and provide the best support and services for our community, we will be asking
for your input. In the next two months, we will be hosting Focus Group Meetings in each of our six counties that
we serve. During these public meetings, we hope that we can secure public input to guide our future actions. We will also be sending out
surveys through our distribution list, so if you cannot attend the focus group meeting, you still have a means to share your input. Last, we
will be forming an Educational Professional Advisory Group with representatives from our public and private educational settings. We
will, of course, continue to consider the advice and input from our Constituency Board members who meet quarterly to advise our center.
On a very positive note, I'd like to end my column with three recent highlights
Tyler Rounds who has been working as an office assistant at our center for the past four years recently graduated with a Bachelor's degree
in public relations from the University of North Florida. Recently, Tyler shared his story about living with autism with the faculty of Thun-
derbolt Elementary school where he inspired the audience and educated them about inclusion.
Jill O'Brienjoined our center as a new educational coordinator on May 3. We are glad to have her join our team of coordinators that cur-
rently includes Elise Bowers, Anne Wilson, Katrina Ressa, and Elisha Landers.
CARD hosted a 3-day intensive PROMPT training (May 6-9) for speech-and-language pathologists (SLP). This helps increase the number
of SLP's who are equipped to provide specialized speech services to students with autism in our local community. Of the thirty attendees,
CARD sponsored ten SLP's from the local school systems and paid their registration for the training.



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Parent Response to the 2009 Annual CARD Conference Scholarship:
Over the last few years, CARD-Jax has been lucky to offer a handful of scholarships to families to attend the Annual CARD conference.
The scholarships cover registration and hotel expenses. Here are responses from last years recipients.


We moved to the JAX area about 4 years ago and this is the 3rd CARD conference I've attended. This year it was because I was fortunate to have received
a scholarship from CARD. There's always something new to be learned when you have a family member with Autism. There's always another strategy you
need to learn to prepare your family to transition to the next phase. Sometimes the workshops and presentations at the CARD conferences are more pertinent
to your particular situation than others; sometimes it's acquiring information you're going to need to be prepared for the future; sometimes it's reinforcing the
plan you've developed; sometimes it's being inspired to have hope! The information you learn can sometimes be daunting, but always empowering. I believe
one of the most valuable gains of attending a CARD conference is the connections you make with the other attendees, whether they are parents, educators,
therapists etc. At this year's conference there were two special experiences for many. Two young men, James Williams and Jeffrey Schmidt told their stories.
They told of their struggles, challenges, supports and achievements in coping with their Autism. As they had started to speak, another mom and I looked at one
another and said, "Can you imagine our sons doing that?" However, throughout their presentations, the young men both spoke about never imaging, when they
were younger, being able to speak to an audience like this. They spoke of conquering their challenges, overcoming their obstacles, fulfilling their dreams and
being proud and happy about their accomplishments. It reaffirmed my belief in hope! --Lesa Walsh


Thank you so much for offering me a grant to attend this year's annual CARD conference in Lake Mary. It 1
gave me the opportunity to meet other parents, ESE professionals, SLPs, and CARD professionals from
across the state. Jeffrey Schmidt and James Williams did such a great job of helping people understand
what it's like to get through school as someone with ASD They offered perspective-taking to neuro-typicals
and yet did so in an entertaining way. I learned more about behavior, came home with new tools and ideas,
and got to talk with others about the challenges & successes that they experience as a person with ASD, or
as a parent or as a professional. I came home re-inspired and energized. As a parent and a professional, it
gave me a break from the stresses of daily life and offered me enough perspective to come home, supplied
with a few choice books and an extended network of professionals and parents. I have already begun shar-
ing information and materials with professionals in my Jacksonville network. We are not in this alone, and
the conference reminded me of that. I loved the conference's slogan, "Together we can." It is perfect.
Thank you again. --
Best wishes, Jeannie Theriault

Thank you first for blessing us with such a wonderful gift and opportunity to go _
and learn about how we can be better parents for our 7 year old son, who has al-
most all the autistic tendencies you can think of (not officially diagnosed yet), and is
vision impaired. My wife and I enjoyed the CARD conference very much! Its nice to
even just be around so many people working, learning, and desiring the same goals.
We learned some new techniques for helping him learn more, and new devices that
can assist him, and lots of programs and resources to help as well.
Our favorite part was probably the Teaching Emergent Language workshop
where again we heard some great techniques and skills to teach our
son which some we have already implemented, and also that scme
of the methods we were already using were confirmed for us I: -
continue using them too to help push him and learn new skilf
and more every day.
Thank you so much, we really appreciate it.

Mark & Helen Smith .

I particularly enjoyed Ilene Chambers and her
emphasis on Inclusion. I work in Duval county as a
speech pathologist at two schools with self contained
and inclusion ASD children. The information was timely. I
I am going to try to include inclusion reading at the K
level mixing a small class of general education children
and ASD children. I have small reading groups in -.....
schools before of ASD and general education children. ..
Both were successful but putting them together could .
really benefit the ASD children with good role models.
Thanks you for the wonderful conference this year.


- Marilyn Bosworth

























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M.Ed. and Jill O'Brien, B.A. Elisha obtained a
Masters of Education degree in School Guidance and
Counseling while currently earning her BCBA in
behavior analysis. Jill comes to us from the Early
Steps program with a psychology background and an
Infant/Toddler Developmental Specialist Certification.
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weltaff members ee
Elisha Landers,
M.Ed. and Jill O'Brien, B.A. Elisha obtained a
Masters of Education degree in School Guidance and
Counseling while currently earning her BCBA in
behavior analysis. Jill comes to us from the Early
Steps program with a psychology background and an
Infant/Toddler Developmental Specialist Certification.


18th Annual CARD

Conference



JANUARY 13-16,2011
LAKE MARY MARRIOTT


OVER 30 EXPERT PRESENTERS

If funding is available, CARD-Jax
will try to continue it's confer-
ence scholarship program for
families. Scholarship monies
pay for hotel reservations and
registration fees. Look for a formal
announcement in our weekly email
updates around Oct or Nov.

Conference Topics include:
Best Practices, Technology, Family
Issues, Transition, Employment,
Adult Issues, Research Advances,
Early Intervention, Education & more


For more information about
conference call


407-737-2566


I


www.hscji.ufl.edu/pediatrics/nautisiii (904-) 633-0760


the


Shinedown Donation to Provide Drum
Therapy for Autistic Children.
Thanks to the rock & roll band Shinedown
(www.shinedown.com), CARD will soon be
offering individual percussion lessons for
students with autism with local instructor,
Jay Brown. Lessons will last 30-40 minutes
and be at no cost to the individual.
Teaching materials for the lessons
(drumsticks, practice pads, workbooks, etc)
were also funded with the donation.
Interested parents should call CARD to learn more information
about appointments and when lessons will officially begin (633-
0760).

Special thanks to SHINEDOWN for their generosity and support.


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Summer Camp Tips:

1) Have a plan B, just in case the camp
doesn't work out. Finding a good match
for your child isn't always easy. Be
prepared to make other plans for the
summer just in case.
2) Don't be afraid to ask about Staff Experi-
ence with autism and Camper-to-Staff
Ratios.
3) Inquire about camp scholarships. lany
camps offer them.






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Jacksonville School for Children
with Autism
Activities designed by an Occupational
Therapist. Limited enrollment.
4000 Spring Park Rd.
Jacksonville, FL 32207
(904) 732-4343
www.isca.us/summer camp.shtml


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