Title: CARD newsletter
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Permanent Link: http://ufdc.ufl.edu/UF00091723/00003
 Material Information
Title: CARD newsletter
Series Title: CARD newsletter
Physical Description: Serial
Language: English
Creator: Center for Autism and Related Disabilities, Department of Pediatrics, College of Medicine - Jacksonville, University of Florida
Publisher: Center for Autism and Related Disabilities, Department of Pediatrics, College of Medicine - Jacksonville, University of Florida
Place of Publication: Jacksonville, Fla.
Publication Date: Spring 2009
 Record Information
Bibliographic ID: UF00091723
Volume ID: VID00003
Source Institution: University of Florida
Holding Location: University of Florida
Rights Management: All rights reserved by the source institution and holding location.

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UNIVERSITY of
U FLORI Vol. 2, Issue 1
College of Medicine Jacksonville Spring 2009
Department of Pediatric Center for Autism and Related Disabilities Jacksonville


CARD
_j~ny


NEWSLETTER


CA-RD stff?
aid 0'l Childes Jr..- J, M.D.

Chief f11v"lopme" l Pediatriycsf &
Ma-akr Ph.D..........A-









* fq 1 I :".



Clinicl Diretort ]I 'l-J[]ii43g
leni M. B l MB.











Ann M. Wisn M... I B
Educational Coordi.ator/Transition
Specialist ^Q^^^^^^^^^
Marlena Fuller, B.A., B ^^^^aBA
Educational Coorinator^^^^^^
Elise o w ersM .A '^ ^ ^^ ^ ^^ ^ ^
Educational Coordinatorl Family^

Counselor ^^w^^^^^^^^^
Angela Mann, M.A. ^^^^

Educational Coordinator ^^^^^


Inaugural Autism
Symposium:
Current Medical Evidence &
Interventions Regarding Autism

'Mh Presented jointly by Wolfson
March 11, 2009
NF- Univ.Center Children's Hospital and the
1200AlumniDr. University of Florida, this
symposium will focus upon
providing attendees with:
1) Scientific knowledge on vaccinations and
autism,
2) Discussions on up-to-date advances in
autism research, and
3) Current behavioral interventions for indi-
viduals with autism.
All parents, caregivers, special needs teach-
ers, psychologists, nurses, speech thera-
pists, occupational therapists, behavioral
therapists, marriage and family therapists,
mental health counselors and clinical social
workers are invited.
Admission is $25.
For more information
go online to:
http //www hsci ufl edu/peds/aut/
events/2009 AutismSymposium pdf


Sibling Support
CARD will begin offering sibling support
groups for the siblings of children on the au-
tism spectrum. The support groups will be
held on the first Tuesday of each month after
school at the various public schools around
the greater Jacksonville area. Support
groups will consist of both fun and therapeu-
tic games to create an enjoyable and benefi-
cial experience for siblings. For specific loca-
tions/dates and details, contact Carolyn Tully
(carolvn.tullvaiax.ufl.edu) with your ques-
tions. This service is funded, in part, by a
grant from the HEAL foundation
(www. healautism now.ora).

CARD Jacksonville Demographics (. fFeb,2009)
Number of Constituents: 2001
Those with ASD: 1968 # Male: 1729
Those with Related Disabilities: 33 # Female: 27


2


www.hsc .ufl.edu/peds/aut


1


MAR 11 Inaugural Autism Symposium
MAR 13 Regional Workshop Social
Understanding and Methods for
Teaching Social Skills to
Children with ASD
MAR 18 CARD Constituency Board
Meeting
MAR 26 APBS International Behavior
Support Conference
APR 8 Bounce over to CARD Egg Hunt















Efec iv t pla h


p t ipc on 6tudnts. te






cies, a c members
Amen as needed
Inld 66e aprpit ses
ments
Prmt sefdtrmnto


(904) 633- 7'60






Letter from the Director:


Dear CARD Constituents,
I often take my ability to engage in social skills effortlessly and effectively for granted. My ability to com-
municate with others, engage in appropriate nonverbal behaviors, adhere to social expectations and rules, and
imitate others has allowed me to succeed in school, in life, and professionally. I am fortunate that I was able
to learn the majority of social skills simply by observing others. Individuals with autism spectrum disorders
(ASD) are not so fortunate in this respect. For this reason, we as educational professionals and supportive
family members must directly teach social skills to individuals with ASD. Further, to facilitate the ongoing
development of skills, we must give feedback and coach individuals with ASD on their engagement in social
skills. As individuals are diagnosed earlier with ASD, such social skill instruction must also start early.
At CARD, we are offering a full-day regional workshop on March 13 on social understanding and methods
Mae Barker, Ph.D., BCBA for teaching social skills with guest speakers, Michelle Chrzczonowski, MS, BCBA and Kristine Ordetx,
Mae.Barker@jax.ufl.edu Ed.D. We are also hosting a number of social skills learning experiences for individuals with ASD across
their life span. Elise Bowers is conducting More than Words play groups for young children on the spectrum
and their parents. Also, for parents of young children, I have developed a computer-based training program that shows you how to initi-
ate and engage in play with your child. Both of these are ideal learning experiences for parents of newly diagnosed children as it shows
parents how to incorporate instruction to address the core deficits of autism in play. Angela Mann, Katrina Ressa and Anthony Rhodes
are continuing to run their Behavioral Detectives groups for children between the ages of 6 to 12 years. This is an innovative social
skills experience for students that utilizes video modeling and detective work outside of the center. While the students undergo
"detective training," parents receive training and consultation on how to facilitate their children's social skills instruction. Dr. Maria
Tapia is continuing to conduct monthly Adolescent and Adult Asperger's Syndrome group at the center with support from Anne Wilson,
CARD's Transition Specialist.
If you are wondering if your child would benefit from the social skills groups and experiences being offered at CARD, I encourage you to
speak to your educational coordinator. If you have not been assigned a CARD educational coordinator, then please contact our center for
assistance today. As always, we are here to serve and support the mission of the statewide CARD program.
Sincerely,
Dr. Mae Barker, BCBA-D


Teacher Partnerships Program
CARD-Jacksonville is proud to continue our participation in the Dept. of Education Teacher Partnerships Program.
This year, six of our partnerships presented at the annual CARD conference in West Palm Beach, FL.
The mission of the Teacher Partnerships Program is to enhance the educational program for students with autism
spectrum disorders. The statewide Centers for Autism and Related Disabilities (CARD) staff join together in part-
nership with Florida educators to provide training and technical assistance in developing a plan for implementing
innovative and effective practices in the school environment.
Jacksonville partnerships presenting at the 2009 CARD Conference:
Gary Wright John Stockton Elementary (Duval County)- The Effectiveness of hands on projects
Sabrina Bunker Oakhill Elementary (Duval County) A performance management program to improve teach-
ers instructional delivery to students with autism
Trina Middleton Abess Park Elementary (Duval County)- Abess Park Elementary Documentary: Highlighting
effective instructional practices at work for students with ASD
Laurie Tudeen Keystone Heights Elementary (Clay County)- Using augmentative devices to increase spontane-
ous requests in an autism classroom
Bridgette Baldwin Ocean Palms Elementary (St. Johns County)- A class wide approach to teaching social skills
in a regular education classroom for students with ASD
Cheryl Stansell, Greenland Pines Elementary and Peggy Turner, Sallye B. Mathis Elementary (Duval County) -
a Multi school implementation of strategies to increase the effectiveness of teachers and paraprofessionals who
work with ASD students
For more information go to: http://doepartnership.usf.edu/


www.hscj.ufl.edu/peds/aut


(904) 633-0760










O- o0 00 0

CARD is encouraging all it's constituents past and
present to update their contact information in our
new database and join our weekly email list.
CARD email updates contain information on
upcoming events, event flyers, and current pro-
grams and services being offered at the CARD-
Jacksonville center.

If you are interested in joining the email list or up-
dating you current mailing address,
simply email:
Anthony. Rhodes @iax.ufl.edu, with
your updated information, name, and
email.





Have you used CARD services? We want your input,
complimentary or critical. CARD staff are dedicated
to providing the best services possible to the Jackson-
ville community and that means getting everyone's
opinion on the services we provide.
Please feel free to email your comments and feedback
to Athonv.Rhodes@iax.ufl.edu.


Englewood High School
Stephen Redlern. the Life Skills Teacher at Englewood
High School, welcomes actual hands-on jobs for his
class from local businesses, churches, schools or indi-
viduals. II you need help with a job. please con-
tact Chris Solomon. Autism Site Coach at 739-5212.
Ext. 240. Pick-up and delivery service for students is
provided.
Life Skills Vocational Class
In this class, students with autism complete a variety
of actual work jobs. During this school year. the stu-
dents have completed jobs such as:
0 Collating and organizing binders for training
0 Counting and rolling loose coins for teachers, staff
and churches
0 Folding letters, stuffing envelopes, and adhering
mailing labels
0 Completing all paper shredding for one agency
0 Sharpening pencils for teachers and collating and
stapling materials.
0 Folding pizza boxes for local restaurants
Off Campus Community Based Education (CBI) Work
Some students with autism at Englewood H.S. also
participate in the off campus CBI work program. Su-
pervised by job coaches, the students complete volun-
teer work and gain valuable hands on experiences at
local businesses. This school year, some students
have worked up to 8 hours a week at Golden Corral,
TJ Maxx, Marshalls and the YMCA. Any business lo-
cated within 10 miles of Englewood High School inter-
ested in partnering with the CBI should contact Chris
Solomon. Autism Site Coach, 739-5212. Ext. 240.


Game Day @ the Library

CARD held it's first ever Game Day at the Duval County Main
Library. The event, open to all ages, held in the Teen Services
area of the Duval Main Library, provided a great opportunity for
individuals to spend time with friends and learn new skills, like
turn taking, following rules, loosing graciously, and giving com-
pliments.

For more information on future Game Days contact
Katrina.Ressa@iax.ufl.edu


wwwl.hsd.ufl.edu/Peds/aut






Dr. Tapia's Social Skills, Parent, & Siblings Groups

For years now Dr. Maria Tapia, Ph.D., a licensed psychologist, has been
working with the CARD center providing psychological counseling, con-
sultation, and holding family support and social skills groups for indi-
viduals effected by Autism. Recently, the groups celebrated by having a
night out on the town, enjoying good food, and one another's company.


Asperger Social Skills Group: Led by Dr. Maria Tapia, Ph.D, this
group assists adolescents diagnosed with Aspergers Syndrome. Group
members practice problem solving techniques and real world scenarios .
while troubleshooting topics of concern to them. Groups meet at 3:30pm
on the 1st Monday of every month. The siblings of participants also meet
for a Sibling Group which is lead by Dr. Tapia, where family members
share topics and concerns they have as the sibling of an individual with
Autism Spectrum Disorder, while playing an enjoyable game, activity, or
making a crafts. For more information please contact Dr. Maria Tapia.
SAdult/Adolescent Support Group: This 1 hour and 30 minute support
group is led by Dr. Maria Tapia, Licensed Clinical Psychologist and as-
sists adolescents diagnosed with Aspergers Syndrome. During this time,
Dr. Tapia provides problem solving techniques and group exercises to as-
sist this population with troubleshooting topics that are of concern to
them. This group meets at 3:30pm on the 2nd Monday of every month.
Please contact Dr. Maria Tapia for additional information. *Individuals
are also free to make an appointment for a 1 hour private counseling ses-
sion with Dr. Tapia.


New in the CARD Library
Wrightslaw From Emotions to
Advocacy: Second Edition (2008)
(The Special Education Survival From Emotil
Guide) by Pam and Pete Wright. scoad dltMn
In Wrightslaw: From Emotions to Advo-
cacy, Pete and Pam Wright teach you how
to plan, prepare, organize -- and get qual-
ity special education services. In this com-
prehensive, easy-to-read book, you learn
about The Special Education Sur
* Your child's disability and educational
needs
* Creating a simple method for organizing your child's file
* Devising a master plan for your child's special education
* Roles of experts: consultants and evaluators
* Writing SMART IEP goals and objectives
* Using test scores to monitor your child's progress
+ Understanding parent-school conflict why it is inevitable
and how to resolve it
+ Creating paper trails; writing effective letters
* Using worksheets, agendas and thank-you letters
+ Strategies to improve meeting outcomes
* Negotiating for special education services


ons


Asp


Asperger's and Girls (2006) A M
Featuring Tony Attwood, Temple
Grandin, plus 7 more experts
Covering topics such as:
* The Pattern of Development of Girls w/ Asperger's
* Gender: A Different Set of Challenges?
Girl to Girl: Advice on Friendship, Bullying, &
Fitting In
Negotiating the Transition from High School to
Beyond
Maternal Instincts in Asperger's Syndrome
Experts in the field share practical advice for both
caregivers and women and girls who are affected by
Asperger's. Chapters are written by women who
have been diagnosed with ASD. They candidly reveal
their experiences and compassionately advise others,
while recognizing the unique problems of girls on the
spectrum.

4


I-v vlolu.~u JU~LU


.I .I .IT !.,





IJF JACKSONVILLE
SBEIIAVIORAL DETECTIVE CAMP ,
(A SOCIAL SKILLS TRAINING CAMP FOR PERSONS WITH ASPIERGER'S SY n w l)

The University of Florida Department of Human 1a
0 Observation (located at the CARD center) is
E4 taking applications for its Behavioral Detective


Detectives in training will spend 10-12 group sessions learning the
j covert techniques necessary to engage others in social interactions,


Lessons include such topics as:
S .* Initiating Conversations
Talking on Topic .
....... Deciphering Non\'erbals & Body Language
A 0* Dealing \-ith Anger
S _* Handing Bullies like a Detective
S ..and manl' more.

SOne of the many tactics employed by The Department to great success
is VIDEO MODELING. This allow-s junior detectives to discreetly
practice a variety of interactions and review them
immediately before encountering real SPY agents
in the field. Detectives work under the instruction
of Top Detectives to create and act out scenarios
that exhibit proper detective protocol. At the end
of camp each participant receives an edited D\VD
of their videos to add to their behavioral library.

Led by Top Detectives Angela Mann, M.A., Anthony R. Rhodes, M.S., &
Katrina Ressa, B.A., BCABA.

For more iiforinationl contact Katrina.Resa @jax.ufl.edu






ww.haimfmen/es/5







Jacks, 1 CARD Paren ships
For the last two years CARD-Jax provided means for constituents and
conference. Participants who aply and are accepted for the scholarship receive $
ference registration ($10 and provide a $400 stipend to cover expenses.
Quotes from parent ....


"1 loved the presentation regarding the basic biology of
autism. Sophia Colamarino distilled the information
into something understandable to science nov-
ices. The enthusiasm for her work that she exudes
makes even the most pessimistic person hopeful for a
major scientific breakthrough.

A member of CARD working with a general education
teacher and an ESE teacher to find a way to teach typi-
cal kids compassion and understanding for children
with special needs was touching. I commend Marlene
Sotelo, Sheree Starr Schulson, and Corrie C. Anderson-
Lohr on their cooperative efforts in the class-
room. Their presentation culminated in a movie made
by the kids in both classes. As a parent of two children
on the spectrum, I loved that a general education
teacher cared enough to teach her students about toler-
ance and acceptance."


F_ liq
"At the CARD Conference I meet many dif-
ferent people, what they all had in common
was a great desire to help children in the Au-
tism spectrum achieve success. The seminars
were great. So much information to learn
about and how to apply the information on a
day-to-day basis. The speakers were so help-
ful and eager to answer questions relating to
my children. I am still reading the information
I received in order to be a better advocate for
my children. This conference is a wonderful
opportunity and gave me great hope that
every day will be better for children in the
Autistic Spectrum. Thank you for giving the
scholarship to me so I had the opportunity to
attend this conference. 11

Patty Wimmer-Johnson


- Angie Grishaw


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I greatly appreciated the opportunity to attend the
CARD conference. I was extremely impressed with the
quality of the presenters who came and provided infor-
mation. Highly qualified professionals such as a neuro-
scientist in the field of research, renowned behavior
specialists, committed parents authors, and skilled teach-
ers all presented a world of hope. As a parent, iwas eh-
couraging and heartwarIi p As a parent, it was en-
couraging and heartwarming to see how successfully
ASD children have been integrated into classrooms with
the help of accepting and creative teachers, and how typi-
al kids are finding out how rewarding it is to befriend a
'hild with autism. My belief in the idea that even though
here isn't yet a cure, there are some very effective inter-
entions was solidified. As parents, my husband and I are
ur son's only lifelong advocates. I feel the responsibility
be pro-active in finding information and learning ways
which I can help him have the highest quality of life.
trending the CARD conference has given me ideas and
viewed resolve to keep fighting for him and helping him
ch his potential. There was not a single wasted mo-
nt on the schedule; I was glued to my seat! highly rec-
mended for parents and professionals.,

Pam Lively


I


" '"~


I




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