Letter from the director
 The "RD" in CARD
 Tips for a successful school...
 Adapted books available for...
 Trainings flier insert
 News and events

Title: PostCARD
Full Citation
Permanent Link: http://ufdc.ufl.edu/UF00087039/00011
 Material Information
Title: PostCARD
Series Title: PostCARD
Physical Description: Serial
Creator: Center for Autism & Related Disabilities, University of Florida
Publisher: Center for Autism & Related Disabilities
Publication Date: Summer 2004
 Record Information
Bibliographic ID: UF00087039
Volume ID: VID00011
Source Institution: University of Florida
Rights Management: All rights reserved by the source institution and holding location.


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Table of Contents
    Letter from the director
        Page 1
    The "RD" in CARD
        Page 2
    Tips for a successful school year
        Page 3
    Adapted books available for checkout
        Page 4
    Trainings flier insert
        Page 5
        Page 6
    News and events
        Page 7
        Page 8
Full Text

The Post CARD

CARD UF/Gainesville Staff
Ralph Maurer, Executive Director
Greg Valcante, Director
Art Wallen, Associate Director
Donna Gilles, Associate Director
Robbin Byrd, Coord. for Educ./Training Programs
Jennifer Flanagan, Coord. for Educ./Training Programs
Cathy Zenko, Coord. for Educ./Training Programs
Ann-Marie Orlando, Coord. for Educ./Training Programs
Margie Garlin, Program Assistant
Leannis Maxwell, Program Assistant
Kathy Robinson, Visual Supports Specialist
Karin Marsh, Volunteer Sibshop Coordinator
Carole Polefko, Public Education Coordinator
Kurt Clopton, Computer Consultant
Lisa Petransky, Student Assistant

Parent Partners
Wendy Baugh, Marion County
Pam Veith, Citrus County
Cheryl Brenner, Putnam County
Sylvia Miller, Marion County
Amparo Perales, Marion County

Constituency Board
Julia Arthur, Vice-Chair
Sherry Dupree
Pat Hawk
Suz Letzig
Ruth Lowery
Diana Mathews
Bobbi Okesson
Martin Rifkin, Chair
Shelly Voelker

Contact Information
CARD UF/Gainesville
PO BOX 100234
Gainesville, FL 32610-0234
352/846-3455 or 800/754-5891
352/846-0941 (fax)

Summer 2004

Dear Families and Friends of CARD,
By the time you receive this newsletter, many of you
will have children back in school. I hope the new year is
positive and productive for all the CARD constituents who
are school students. We are already busy with IEP meet-
ings, meet the teacher dates, teacher training workshops
and helping families prepare for the first day of school. Of
course, we continue to support and learn from our constitu-
ents who are adults and from their families as well as from
our youngest (zero-to-three-year-old) constituents. We are
planning more information sessions, workshops, and confer-
ences than ever before and are hoping to provide you
with a full year's calendar of events in the near future.
July begins a new year for the CARD Centers in
Florida. This summer we have had two staff changes at our
Center. Margie Garlin has relocated with her family to
Hernando County but is still working for us in a slightly
different capacity on a slightly reduced schedule.
Caroline Raye has retired from CARD pending the birth of
her second child and our funding will not permit us to
replace her, so we will be operating with a smaller staff this
year. Nevertheless, we still have a great group of profes-
sionals and Parent Partners working at CARD as you can
see in the column to the left.
Our Parent Partners deserve a special note. The
funds for us to employ these dedicated and experienced
parents come from a charitable donation from the Maren
Foundation. As our CARD budget gets tighter and tighter,
we continue to seek other sources of funding to help our
constituents. The Maren Foundation has been our greatest
contributor for the past two years. Thanks to their donation,
we have a great group of Parent Partners who are there to
listen to other families in need and to share their valuable
experience and hope.

Page 2
The "RD" in CARD
Page 3
Tips for a Successful School Year
Page 4
Adapted Books Available for Checkout
Page 5 & 6
Training Flier Insert
Page 7
Visual Supports Workshops
Endorsement in Severe Disabilities
Page 8
5K Autumn Run for Autism
13th Annual CARD Conference News

A Publication of the Center for Autism and Related Disabilities
at the University of Florida/ Gainesville

In 1993, the Florida Legislature created the system known as CARD, providing nonresidential
resource and referral, training, individualized and programmatic technical assistance, and public
awareness services for and about individuals who have communication and behavioral difficulties
with the diagnosis of autism, autistic-like, sensory impairment with additional disabilities, or deaf-
blindness. For years prior to CARD's establishment, parents and professionals had worked hard to
get legislators to respond to the needs of families and service providers regarding autism spectrum
disorders. At the same time, a project called the "Community Intervention Project for Students with
Sensory Impairments and Other Handicapping Conditions (CIP)" funded by the Florida Department
of Education, was operating at UF's Department of Psychiatry (the current home of UF/Gainesville
CARD), with Greg Valcante, Donna Gilles, Art Wallen, and Winnie Gayler. This three-year grant pro-
vided assistance to families and service providers who lived with or worked with children and young
adults who were blind/visually impaired or deaf/hard of hearing with additional disabilities, or deaf-
blind ("dual sensory impaired"). After the end of the grant cycle in 1991, CIP parents were promised
that they would be able to receive similar services through
programs developed in the future. Two years later, that
promise was met by being named as a constituency group
of CARD.
At first, many people questioned why individuals with
sensory impairments and additional disabilities (including
deaf-blindness) were con- sidered for services. But the
more we find out about the complex characteristics of au-
tism as well as the related disabilities, the easier it becomes
to recognize how similar the supports are between groups.
One basic difference be- tween constituencies is that
individuals who have Autism Spectrum Disorder tend to have
difficulties in processing au- de ditory or visual information,
whereas individuals who ex- ___ perience vision and or hearing
loss accompanied by other disabilities have difficulty in gath-
ering information through the affected sensory channels) as well as processing that information.
Given this difference though, most individuals in both groups benefit when information is presented
in more than one modality, while concentrating on the sensory channel that provides them the best
access to and processing of information. In fact, many established practices such as using sched-
ules and routines, can be found in earlier literature about strategies for people who are blind, visually
impaired, or deaf-blind. And of course, using alternative means of communication (e.g., sign lan-
guage) originated within the deaf/hard-of-hearing culture.
So what is CARD doing for the other part of our constituency? First, we accept referrals for
children and adults who would qualify for vision, hearing, or deaf-blind services and who also have
cognitive disabilities. Second, we collaborate with the Florida Outreach project for Children and
Young Adults who are Deaf-Blind, directed by yours truly, to present topics of interest to a broader
constituency at the annual CARD conference. The 2003 conference marked the first time we orga-
nized presentations in strands, one of which was the related disability strand. Three presentations on
literacy, considerations for students with multiple disabilities, and calendars, were as well attended as
other strands, a success that supports having future strands on related disabilities.
What can you do? Many of you know other families who have children or teachers who have
students who meet eligibility criteria for CARD services, but do not have autism. The individuals may
have cognitive disabilities accompanied by a vision loss or a hearing loss, or may have a vision and
a hearing loss together. In order for us to represent our constituency better, please encourage them
to call us so that we can determine their eligibility to be placed on our registry for mailings or to
request assistance.

The start of a new school year is quickly approaching, so now is a great time to begin plan-
ning for your child's first day. The following are some tips to help you and your child have a success-
ful and positive first-day-of-school experience. Many of these suggestions focus on the very impor-
tant relationship you will form with your child's teacher.

+ Tour the school and classroom with your child sometime before the first
day. You may need more than one day! For middle and high school stu-
dents, ask for a schedule early (request this on the IEP) so you can walk
through it with your child.
+ On the tour, find the bathroom, playground, lunchroom and other impor-
tant places. Introduce your child to as many people as you can and take
their pictures while they are in their respective places (eg; lunchroom atten-
dant, front office staff, PE teacher, security guard, classroom paraprofes-
sional) That being said, be careful not to overwhelm your child with introduc-
+ Make an appointment to meet with your child's teacher before the first
day of school. Make the appointment brief and establish a duration. (eg; 20
+ Provide the teacher with a written list of important information about your
child. Use the "All About Me" or similar format. For an example, see http://
www.apraxia-kids.org/families/allaboutme.html. Or, check out a book on
"Person Centered Planning" from the CARD library. Contact Jennifer
Flanagan at jnye@mbi.ufl.edu or 352/392-4172 if you are interested in attend-
ing an "All About Me" workshop in the future.
+ Request that a method for home-school communication be established,
but let the teacher decide with you how that would be done (eg; weekly
conference, home notebook, telephone calls or e-mail)
+ The teacher should be provided with emergency phone numbers and also
with an indication of other times it may be important to contact you :
Do you want to be called if your child has a tantrum or engages in
Do you want to be called sometime during the first week with an
update on your child's progress?
Invite your child's teacher to visit you and your child in your home. This is a
good way to show the teacher first hand how your child communicates and
how s/he behaves in a familiar environment. If possible, videotape your child
at home using her communication or behavior system and share the tape
with the teacher.
+ Volunteer to help the teacher in some way : inside OR outside the class-
+ When you meet with your child's teacher, ask her for ideas on how to
make the transition smooth. Listen to her ideas.
+ If the teacher has limited information about autism spectrum disorders,
encourage her to contact CARD to find out more.

Finally, try to keep the experience positive, especially for your child and the teacher. Pre-
pare them both the best you can with the resources you have available, and don't sweat the small

Thanks to a grant from Children's Miracle Network and the hard work and dedication of par-
ents and CARD staff, our library now has 15 adapted books available for checkout and rave reviews
already are rolling in.
What is an adapted book? Well, it is a book that has had technology or manipulatives added
so that language and literacy become visual and interactive.
The project started November 2003, when CARD learned the grant application we submitted
to the Children's Miracle Network had been approved. The grant was for materials to create an
adapted book library for our younger constituents.
We used the money to buy materials to support the communicative and physical needs of
children with autism and related disabilities. The materials included, single message voice output
devices, Velcro, picture library software, laminate, hot glue, a book rack with pouches and books.
We selected the books based on their predictability and illustrations.

JList of Adapted Books Available for Check-Out:
Caps for Sale by Eshyr Slobodkina
Mortimer by Robera Munsch
Jump Frog Jump by Robert Kalan
Have You Seen My Ca? by Eric Carle
It Looked Like Spilt Milk by C. Shaw
From Head to Toe by Eric Carls
Is your Mama a Llama by Deborah Guarino
Goodnight Moon by Margaret Wise Brown
Five Little Monkeys by Eilen Ghristlelow
Barnyard Math with Farmer Fred by Sandi Hill
Dirty Duds by Pati King-DeBaun
Whatfs in My Pocket? by Rozanne Lanczak Williams
Mrs. Wishy-Washy by J. Cowley
Have You Seen My Duckling by N. Tafuri
Thump, Thump, Rat-a-tat-tat by Gene Baer
Jackson, a CARD constituent, enjoys one of the adapted books available from the CARD library.

We asked eight parents to help us put the books together. Our goal was to describe some
intervention strategies for these parents to use when reading an adapted book with their children
and provide them with materials to make it a fun and meaningful experience. For their participa-
tion, the parents received two books of their choosing, a Big Mac single message voice output
device, and Picture This software. When they were finished adapting the books, they returned
one for use in the library.
The comments from the parents who participated and used these adapted books to read
with their children have been very encouraging. "My child enjoys using the BigMac while she is
reading independently," one parent stated. "I like the opportunity she has to read her part. She is
basically nonverbal but is starting to verbalize words she memorizes from our adapted books."
Thanks again to everyone who helped with this project and to the Children's Miracle Network
for making it possible. We hope you will visit our library soon and see this success story for yourself.

We are currently planning our first Marion County sibshop for the
end summer/beginning of the school year.
Please email Karin Marsh with any suggestions for locations or activities.

Center for Autism and Related Disabilities



For Parents and Professionals
Come learn the basics needed to guide you through the journey of Autism Spectrum Disorder.

These training are FREE of charge, but you must REGISTER by calling or e-mailing
Leannis Maxwell so that we can plan appropriately and so that you can be sure no changes have been
made. Leannis Maxwell can be reached by phone at 1-800-754-5891or 352-846-3455 or by e-mail at

Columbia County
Schools Administrative
HWY 90
Lake City
Bldg.#2 (Central Bldg)
Room 153
6:30PM 8:30PM


St. John's Lutheran
1915 SE Lake Weir Rd.
Ocala, Fl. (In the
Social House by the
6:30PM 8:30PM

August 24, 2004

September 14, 2004

October 12, 2004

November 16, 2004

December 14, 2004

August 26, 2004

September 16, 2004

October 14, 2004

November 18, 2004

December 9, 2004

Everything you wanted to know about ASD,
but forgot to ask.

What are you trying to say?
Understanding and improving your child's
communication skills.

Why don't I fit in?
Helping your child learn unspoken social rules

There is a reason that I am acting this way.
Understanding and preventing challenging

Squeeze me, spin me, swing me!
Meeting your child's sensory needs.

Everything you wanted to know about ASD,
but forgot to ask.

What are you trying to say?
Understanding and improving your child's
communication skills.

Why don't I fit in?
Helping your child learn unspoken social rules

There is a reason that I am acting this way.
Understanding and preventing challenging

Squeeze me, spin me, swing me!
Meeting your child's sensory needs.



Is Potty Training a challenge?
Come join us for a three session work group
on "Potty Training" presented by UF Center
for Autism and Related Disabilities (CARD).
.* This work group will join together to provide
how-to information on toilet training.

Session 1: September 23
The teaching model and putting
together an assessment plan

September 30
Create a program
to teach toilet use


Where: St. John's Lutheran Church
1915 S.E. Lake Weir Rd., Ocala, FL 34471
In the Social House by the Preschool
When: 6:30- 8:30 p.m.
Please call or email Leannis Maxwell

to register.
The workshops are free but
to register.
Call: 1-800-754-5891 ext. 5
Email: maxwell@mbi.ufl.edu

3: October 7
Meet to follow up,
problem solve, and
answer any questions
that have arisen.

you need

Session 2:

Make it happen at our MAKE & TAKE
Join us for a FREE, hands-on workshop.
Learn how to make and use:

At these workshops you will have access to
computers with appropriate software, laminating
materials, Velcro, magnets, etc. CARD staff will
be available to answer your questions and guide
you as you create the visual supports that will be
most helpful to you and your family. All materials
will be FREE. The only thing that you will need to
provide would be photographs of family
members or favorite toys.
These training are FREE of charge, but you must
REGISTER by calling or e-mailing Leannis Maxwell
so that we can plan appropriately and so that
you can be sure no changes have been made.
Leannis Maxwell can be reached by phone at
1-800-754-5891 or 352-846-3455 or
by e-mail at maxwell@mbi.ufl.edu.
Space is limited, so sign up now!

Courses toward a State Endorsement in Severe Disabilities will be offered this Fall and Spring
Semesters in a joint program between UF and FSU.
Distance education courses and financial support will be available for current UF Master's Students
and current teachers interested in applying for an endorsement in severe disabilities.

Courses Available Fall 2004
EEX 6936: Development and Assessment of Students with Severe Disabilities
EEX 6936: Transition and Career Planning for Students with Severe Disabilities
Courses Available Spring 2005
EEX 6234: Assessment, Curriculum, and Instruction for Students with Severe Disabilities

Each course is 3 credit hours and includes an additional one-hour field experience. Fall courses will
be offered as web-based courses. The spring course will include both web-based instruction and
interactive sessions across the State, using the Internet.
Financial assistance is available for a limited number of participants.
If you would like to be considered for financial assistance, please specify at registration.
For more information, please contact Dr. Diane Ryndak (dryndak@coe.ufl.edu)
or Eric Landers (edec@ufl.edu) at UF.
You can also access info online at http://learningforlife.fsu.edu/learningforlife/index.cfm

Alachua County
First Tuesday of each month
6:00PM 8:30PM
CARD office
806-A NW 16th Avenue
Columbia County
9/21/04, 1/18/05, 4/19/05 and 7/19/05
6:00PM 8:30PM
Columbia County Schools Administrative Complex
Bldg. 2, room 130
HWY 90
Lake City
Marion County
10/19/04, 2/15/05, 5/17/05, 8/16/05
6:00PM 8:30PM
The New Phoenix Center
2019 NE 35th Street
Citrus/Hernando Counties
11/16/04, 3/15/05, 6/21/05, 9/20/05
5:30PM 8:00PM
Central High School Technology Lab
14075 Ken Austin Pkwy

Visual Supports Workshops

Join Silver Springs and the Ocala Runners Club for the inaugural
5K Autumn Run for Autism benefiting the New Horizon School for Autistic Children.

Saturday, September 18, 2004 7:30 AM

The first 200 entrants will receive complimentary custom shirts and
everyone can enjoy a free 1-mile Kids Fun Run after the race.

Adults $15 until Sept. 14th, $20 thereafter
Students $12 until Sept. 14th, $20 thereafter
($2 discount for Ocala Runners Club Members)

There will also be a post-race raffle and refreshments, and all participants
will receive discounted admission to Silver Springs for a special Italian Festival!

Race day registration begins at 6 am
All pre and post race activities will take place in the Wild Waters Parking Lot.
Register online at www.active.com
For more information call 352/624-3540 or visit www.ocalarun.org

The twelfth annual CARD Conference will be held in Orlando, Florida on
January 14, 15, and 16, 2005 at the Adams Mark Hotel.
Presenters will include:
Bill Ahern Feeding Issues
Mary Beth Doyle Paraprofessional Supports
Steve Gutstein Relationship Development Intervention
Bryan King Medication Issues
Soma Mukhopadhyay- Rapid Prompting Method
Jerry Petroff Transition Issues and Related Disabilities
Cathy Rice CDC Incidence of Autism Study
Rich Villa Inclusion
Diane Adreon from the University of Miami CARD and Ann-Marie Orlando from the UF/Gainesville
CARD will also be presenting. There will be tracks of information sessions devoted to Adult Issues,
Research, Asperger Syndrome, Education, Family Issues, Related Disabilities,
Spanish speakers, and the Newly Diagnosed.
More information, and conference registration materials will be available this fall.

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