• TABLE OF CONTENTS
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 Letter from the director
 The Mountain
 Autism awareness
 The art of discipline
 Parent partners
 Parents Helping Parents of Florida,...
 CARD UF/Gainesville news
 Sibshop update














Title: PostCARD
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Permanent Link: http://ufdc.ufl.edu/UF00087039/00008
 Material Information
Title: PostCARD
Series Title: PostCARD
Physical Description: Serial
Creator: Center for Autism & Related Disabilities, University of Florida
Publisher: Center for Autism & Related Disabilities
Publication Date: Fall 2003
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Bibliographic ID: UF00087039
Volume ID: VID00008
Source Institution: University of Florida
Rights Management: All rights reserved by the source institution and holding location.

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Table of Contents
    Letter from the director
        Page 1
    The Mountain
        Page 2
    Autism awareness
        Page 3
    The art of discipline
        Page 4
    Parent partners
        Page 5
    Parents Helping Parents of Florida, Inc.
        Page 6
    CARD UF/Gainesville news
        Page 7
    Sibshop update
        Page 8
Full Text



The Post CARD


A Publication of the Centerfor Autism and Related Disabilities
at the University of Florida Gainesville


Fall 2003


CARD UF/Gainesville Staff
Ralph Maurer, Executive Director
Greg Valcante, Director
Art Wallen, Associate Director
Donna Gilles, Associate Director
Robbin Byrd, Support Specialist
Jennifer Flanagan,Support Specialist
Cathy Zenko, Support Specialist
Karin Marsh, Support Specialist
Ann-Marie Orlando, Support Specialist
Caroline Raye, Community Srvcs Coord.
Margie Garlin, Program Assistant
Leannis Maxwell, Program Assistant
Carole Polefko, Program Assistant
Kurt Clopton, Computer Consultant
Bear Trickey, Student Assistant

Parent Partners
Wendy Baugh, Marion County
Pam Beville, Citrus County
Cheryl Brenner, Putnam County
Sylvia Miller, Marion County
Blake Misura, Alachua County
Amparo Perales, Marion County
Vickie Snook, Alachua County
Lisa Wysocki, Alachua County

Constituency Baord
Julia Arthur, Vice-Chair
Sherry Dupree
Pat Hawk
Suz Letzig
Ruth Lowery
Diana Mathews
Bobbi Okesson
Martin Rifkin, Chair
Shelly Voelker

Contact Information
CARD UF/Gainesville
PO BOX 100234
Gainesville, FL 32610-0234
352/846-3455 or 800/754-5891
352/846-0941 (fax)
www.card.ufl.edu


bear Families and Friends of CARD,

I am very excited to send you this issue of the PostCARD.
Over the past several months, since our Autism Awareness Ac-
tivities in April, we have been collecting stories and articles
written by or about families from our region. Thanks to the
efforts of some parents of individuals with autism, the Palatka
baily News, the Ocala Star Banner, the Citrus County Chronicle
and the Gainesville Sun have all printed articles about autism.
Furthermore, several parents have sent us pieces that they just
felt inspired to write about their children and families. It
seemed only natural to compile and publish these stories in our
newsletter so we can share them with all of you. Therefore, each
article in this edition of the PostCARb (with the exception of my
letter and our SibShop Update) was "penned by parents." A few
of the articles were solicited by us as we saw individuals in our
communities involved in "newsworthy" activities. Others were
sent to us by parents who just wanted to write about and share
their feelings and experiences. We feel confident that you will
appreciate what they have to say and hopefully identify with
some of their stories. The articles include pieces on discipline,
the Marion County Parents Helping Parents support group, autism
awareness, the CARD Parent Partners program, a moms' theater
group, and an inspiring reflection on parenting a child with autism.

We hope to make "penned by parents" a regular feature in
our PostCARb so please keep us in mind when you feel inspired to
write about your experiences and send us your thoughts to share.


Sincerely,


PAGE 2
The Mountain
Wendy Baugh

PAGE 3
Autism Awareness
Carol Paullin

PAGE 4
The Art of Discipline
Pam Beville


PAGE 5
Parent Partners
Cheryl Brenner

Hi Mom: The Play
Carole Polefko

PAGE 6
Parents Helping Parents
of Florida, Inc.
Sylvia Miller

PAGE 7
CARD UF/Gainesville News


"a~









There is a mountain. It is a huge mountain,
covered with snow and ice, with many cliffs and deep
ravines. At the top of this mountain is a beautiful
summit, where my child can dwell and function in a
typical society. My goal is to get my child up this
mountain as quickly and easily as possible. I see a long
line of other mothers with their children. Why of
course! They are waiting to get on the ski-lift obvi-
ously the fastest way to the top. I take my child and
we get our tickets at the ticket booth. We stand in the
long line for the ski-lift and wait our turn. We are
excited about the fun ride up. We watch the other
moms and children give their tickets to the man at the
gate, and then go on their merry way.
Our turn comes.
The man looks at my
ticket and says "Go
ahead." However, when
he sees my son's ticket,
he tells me that my son
S can't take the ski-lift.
S' I"Why not?' I ask.
"Because his ticket is
stamped with the word
AUTISM."

Well, needless to say I am so angry with this
man. "It's not fair!" I cry. "All the other children get
to ride the ski-lift!" "Sorry, says the man. Children
with AUTISM may not ride the ski-lift." "Why not?" I
scream. "It's just the way things are," he replies.
I am extremely upset. I try bargaining. "I'll give you all
my worldly possessions, if you just let him ride the
lift." "Can't do it", he says staunchly.
I resort to begging. "Please have mercy on us!" I
am on my knees. Again his reply is an even firmer "No!"
"How in the world do you expect me to get my son up
this gigantic mountain?" I ask. "That's your problem.
Now get out of here, you're holding up the line!"
So, I take my son, whom I love more than
anything on this earth, and we start climbing. The
mountain is cold and steep. It's even covered in slick ice
at certain spots. It seems like it takes forever just to
go a half a mile.
I look up at the other moms and their children
on the ski-lift. Some wave and shout, "You can do it!"
Some even cry and yell, "I wish I could help!" Others
actually point and laugh at us. I throw snowballs at
them.
I am so tired and so discouraged on this dread-
ful mountain. It wouldn't be so bad if it was just me
that had to climb it. But every day I have to prod,
push, and coax my child up. Sometimes I even have to
carry him. I am unbelievably lonely.
Then one day, lo and behold, I see another mom
with her child climbing on this very same mountain. We


wave and shout to each other. We make our way across
the land and meet. We embrace and we cry-both tears
of joy and of sorrow. For I know that I'm not alone
anymore, but I also know her pain. We talk for hours,
and we agree to climb this awful mountain together. We
share our equipment, and try to map out the best paths.
We share one another's burdens. Most of all, we share
our love for our children. Sometimes one of our children
falls into a deep ravine. We help each other to pull him
out. Sometimes they make great progress, and we re-
joice together. And there are times when it seems that
our children are stuck in a snow bank, or days when they
make no progress at all. Sometimes they even fall a long
way down. We still help each other. And we remind each
other that we are a lot farther up the mountain then
when we first started.
We encourage one another, and always, always,
keep hope alive. And we realize that even though the ski-
lift sure would have been a whole lot easier, there is a
strength of character, and a resolve inside of us that we
never would have known if not for this mountain. Some-
times we even find precious jewels in the darkest caves.
So, we continue to climb, with the strength, comfort,
and support of each other. And together we marvel at
our amazing and beloved children.
Wendy Baugh is the mother of Sam, age 6. She lives in Marion
County where she is active in God's Exceptional Moms (GEMS)
parent support group. Sam was featured in Autism Awareness
posters (see below) that were displayed in several businesses
in Marion and Alachua Counties during April.


ApPOH 1"t Aufig m



A utism is a lifelong
developmental disability
resulting from a
neurological disorder
that affects brain
functioning.
u usually occurs during the
first 3 years of life.
wo of every 1,000 births
affected.
nterferes with speech,
learning, and social
development.
symptoms can range from
Smiled to severe.
ore common in boys than
girls.


Facts used with permission of the Autism Society of America
1-800-3AUTISM









The other day I was at the grocery store and
was in line wanting to get home and was just gener-
ally impatient with the situation. While standing
there I became aware of the other people and how
impatient they were and then sort of smiled to
myself and thought what a world, nobody wants to be
where they are and are not shy in showing their
impatience.

Then I noticed the young man bagging grocer-
ies. He seems oblivious to all the glares aimed at him
and the loud sighs aimed at him. He was a little on
the slow side but very careful and doing a very good
job no one seemed to care about.

I began to wonder if these people knew how
hard it was each day for this young man to try and
fit himself into the round slot when he maybe was a
little on the rectangle side. Maybe they would have
more appreciation of his effort if they knew how
hard he was working at doing the best he could.

One woman asked him if he could speed it up
and he stopped doing what he was doing and said he
didn't want to injure her groceries that she had to
work so hard to get. She said just never mind and
impatiently waited and he resumed his job just as
before.

I knew he felt the rudeness of others even if
he wasn't showing it at the time because he is a
human just like us so when I got up for my turn I
told him he was the best person I had ever had to
bag my groceries. I said thank you and made sure I
said all of this loud enough so the others behind me
would get the message.

I feel I need to do these things when the
opportunity arises because my son has autism and I
know how hard he works to fit in to a society that
doesn't understand his battle to be a part of some-
thing, to belong as the rest of us want for ourselves.
He is different but when did different mean not a
good thing. I think different is a good thing. It
makes us grow and learn and love and be kinder, more
understanding people. Different is a challenge.
Would you be up to that challenge every day?

Autism is a lifelong developmental disability
resulting from a neurological disorder that affects


the way the brain functions. People with autism have
difficulties interacting with others, behaving in a
socially appropriate ways, using language and commu-
nicating. Not being able to read social cues. Mis-
reading facial and other cues if at all.

They tend to develop narrow interests, re-
petitive behaviors, and intense attachments to
routines,they can seem too sensitive to sights,
sounds, smells, or physical contact or not sensitive
enough.

The Autism Society of America estimates
that as many as 1 in every 500 children is born with
autism. It affects more people than Down's Syn-
drome, Muscular Dystrophy, or Multiple Sclerosis.
Autism is more common in boys than in girls.
Autism affects people of all races, religions,
ethnicities and social backgrounds. Autism differs in
its severity from person to person.

Everyone needs a little patience. I think it is
not too much to expect.


Carol is the mother of a young adult with autism.
She wrote this piece for Autism Awareness Month.
Carol also promoted Autism Awareness within her
local law enforcement community by meeting with
Citrus County Sherrif Jeff Dawsy and presenting
him with a copy of Denis Debaudt's book "Autism,
Advocates, and Law Enforcement Professionals".

Carol and her family recently moved out of Florida
We are sorry to have lost such a great advocate
and Constituency Board member and wish her,
Scott, & their family all the best.


Always i

Unique W

Totally

Intriguing

Sometimes

Mysterious









The greatest challenge I have encountered, thus far, as a parent of a child with Autism is how to
discipline him. My son, Jonah was formally diagnosed at the age of two years and seven months. At that
time, he had minimal language development and vocabulary, which made it very hard to communicate with
him. I didn't know any parents personally who had children on the spectrum and there weren't any support
groups available either. Obviously, this is before "Parents Helping Parents" was in existence. Jonah wasn't
enrolled in any early intervention program and had not started any therapies yet. We were on the necessary
waiting lists for speech and language therapy and he wasn't able to start in the Pre-K public school program
until after he was three years old. Needless to say, I was very confused and frustrated and everyone close
to me did not understand what I was going through. Time outs only worked sometimes but not without a
fight. I wanted to avoid "the fight". I honestly have to admit that sometimes "I lost it". I yelled and
screamed and even resorted to spanking occasionally. I knew neither of these tactics was effective and I
immediately felt guilty and full of shame. I didn't know for sure if he understood half of what I said to him,
which made it very difficult if not impossible to reason with him. I needed help and guidance fast!
The very first conference I attended was the annual CARD Conference and I immediately felt at
home. I started asking everyone and anyone who would listen to me. I even waited in line to ask Temple
Grandin, an adult author with Autism, what worked for her parents. She told me that her parents used
rewards for good behavior and they let her watch her favorite television show as a reward. All the profes-
sionals I approached said the same thing: Positive Reinforcement.
I knew Jonah was very visually perceptive, so I decided to build on this excep-
tional skill of his. I was already using sequence boards for help with his schedule.
His sequence board consisted of pictures for getting ready for school, going to
__ I bed, etc. I had learned this from Cathy Zenko, our CARD representative. Instead
of fighting with him in the morning to get dressed or eat breakfast, I would guide
him to the wall where his schedule was located and ask him, "What do we do
first"? He would then tell me according to the picture "Put on my clothes" or
whatever came next. I also learned about an internet site, www.do21earn.com,
where you can make free picture cards and schedules. I found a weekly schedule
that I can print so I made a weekly behavior schedule. The behaviors I included
on his chart are: Putting on his clothes, brushing his teeth, eating, taking a bath,
going to the bathroom and listening. He received a sticker by every task or behavior he accomplished daily.
This worked remarkably! In no time, all I had to do for positive reinforcement was tell him he wouldn't get a
sticker if he didn't listen, put on his clothes, etc.
Presently, Jonah is five years old and is attending a Pre-K Program at an elementary public school.
His language and communication skills have progressed remarkably. I still use his positive behavior chart. I
have had to add new behaviors and pictures to it accordingly, but it still works most of the time. I also use
his videos as a reinforcer now. When he gets off of the school bus, the first thing he tells me is "I was a
good listener and I get a movie" or "I didn't listen so I don't get a movie". He always tells the truth which is
so cute.
Thank God for all the people we have in our life who have helped me and Jonah. I feel very blessed
and I am grateful that I went searching for the answers to the questions I had. I know this is an on-going
process but I know I will never be afraid to ask.


Pam is the mother of Jonah, age 5. She is one of the founding partners of Parents Helping Parents of Florida
(PHPF) in Marion County and is currently taking the Partners in Policymaking course so she can be an even more
informed resource for her son and other families.


The Art of Discipline
by Pam Beville









The Parent Partners Program at the CARD in
Gainesville was established in March, 2002.

As a Parent Partner my job is to:
+provide information and training to other parents
based on the individualized needs of the family
*help the families see beyond the disability and
renew their sense of hope
+share information on community resources
+create networks of support for the families
+team with CARD staff in difficult family
situations
+encourage and assist the families in attending
workshops and training given by CARD staff
and others
*assess the training needs of the families
+collect additional information on service providers
available in my community
+promote autism awareness in my community

Above all, I feel the most important thing that I
can do is to listen to families and be there for
emotional support. When your child is diagnosed
with autism, you feel all alone. You have questions
that need to be answered. I try to help families
by sharing my own experiences. Being a Parent Partner
has been very rewarding for me. Because I have a 12
year old daughter with autism I understand what other
parents are experiencing. When I meet families I
immediately feel a connection with them because they
are going through some of the same things that I
experienced with my daughter, Hillary. I feel that I
have been very fortunate to be a Parent Partner be-
cause I have had the pleasure of meeting some wonder-
ful parents and some very special children.

A lot of the children are being diagnosed at an
earlier age because there is more awareness about
autism. I look at these kids who are so special and I
see brighter futures for them. If I can make a
difference, even in some small way, then I am happy.


Many parents of children with autism spectrum
disorder feel a great sorrow that they often cannot
connect with their children. A Gainesville mother,
Susan Thiele, has created a play, Hi Mom, with the help
of other mothers that will express their feelings of
sorrow and frustration, but also feelings of joy and
incredible strength. Planning for the play started with
informal dinners and story-telling at Susan's house.
These sessions involved laughter, tears, and stories
that would help weave the play. The dinners were very
important to the mothers because they were able to
connect with others who shared a bond that most
people wouldn't understand.

Susan, a mother of a child with bown Syndrome
and ASb, is also a certified psycho-dramatist. She
received a degree in Theatre from Northwestern
University and has worked with teens with alcohol and
drug addictions and their parents in creating therapeu-
tic plays that toured high schools. Hi Mom was created
because Susan and the other mothers want to help
other people like their children's teachers and school
administrators, gain a better understanding of what
their lives are like.

The group hopes to receive a Robert Wood
Johnson Grant to help with production costs and per-
haps develop a video and training manual that could be
used by other support groups around the country to
help them create their own therapeutic plays. The
Across Town Repertory Theatre has agreed to host
the play in the Fall and there are plans to bring the
play to other venues and disability conferences.

Susan has solicited help from people already
working within the disability community. For example,
a Behavior Specialist she knows will do the lighting and
a teacher will create a Power Point presentation that
will be incorporated into the play. She hopes that
others will come forward to share their talents. She is
also looking for more mothers interested in being
performers. Since there are plans for touring and she
knows how busy mothers are, she will need a few
groups of actors.

If you are interested in helping out or want more
information please contact Susan by phone at 352/
376-9706 or by email at susan_thiele@hotmail.com.

Susan is the mother of Jacob, 10, and Jonah, 5. She
is a licensed psycho-therapist and an active advocate
for children with ASD.


Cheryl Brenner is a Parent Partner for CARD in
Putnam County. She is the mother of Hillary
Brenner, age 12.










My name is Sylvia Miller and I am the very proud mom of three children--two sons aged seven and nine and an
eleven-year-old daughter. I first became involved with CARD back in 1996-97 when after much research on my part
and several evaluations on the part of the "system" it was announced that I had been blessed with a (then three year
old) son with autism. I was devastated, to say the least, but not for the reasons most people would think. I was
devastated because bad and I had scolded, punished and on occasion even spanked our son thinking him stubborn.
You see, all his traits only became visible the day I returned home from the hospital with his baby brother. I had
feared that going away to have a baby would somehow affect him (I mean this was the first time I had ever left him
for an extended period of time) and I honestly believed that his odd behaviors were just a form of the "sibling
thing" that even patience had not managed to quell. I had no idea of the changes that were really taking place. My
son, Kibby, spoke fluent sentences and could count to seventy consecutively. He knew the alphabet, the colors, and
the days of the week. He had a very extensive vocabulary and had begun to learn addition and subtraction. He was
an expert at putting puzzles together, loved to play and sing and we understood just about every word he ever said,
all before age two and then everything changed. By the time his baby brother, Shukiy, had turned six months old,
Kibby no longer spoke, no longer ate, no longer played. He seemed lost in himself most of the time and would totally
destroy the home, throwing things all over the place. I wondered at first if it was the trauma of my leaving him for
five days that had bought this baffling behavior into existence. Needless to say, I learned that nothing I had done
had caused any of this behavior to happen.
bad had a difficult time accepting that there was something different about his son and I had a difficult
time accepting that he just couldn't see it. So, I had come to Florida that year without bad seeking the support of
my mom. Hearing that I was moving to Florida, only days after the evaluation, one of the therapists who evaluated
Kibby had directed me to CARD and Emily Savarese was the person who came to our home and worked with him. She
explained to me in detail what autism was and the research that had been done thus far. She taught me ways to
begin working with him and was the first person to introduce me to the Picture Exchange System. We worked very
closely together to find methods that would help him to communicate his needs and she prepared lesson plans to
teach him to do chores and participate in everyday activities without too much anxiety on both our parts.
It was an extremely lonely time for me, being new to the area with no friends, bad seventeen hours away and my
mom not being able to cope with the nighttime screaming and behaviors. She felt my son should be institutionalized.
Though the support from CARD was great and Kibby's Med-waiver support coordinator had found us an incredible
speech therapist here in Ocala, I tired very quickly and after only a year, returned to New York and bad. It was
then that the real learning began.

bad was now more accepting of his son's behaviors and we became an awesome team. Not a moment too soon
I might add, because six short weeks after my return to New York we lost our oldest daughter to a tragic and
untimely death and shortly thereafter found out that our youngest son also had autism. There was no time to mourn
on either account. We still had a six-year old daughter who had to grow up very quickly as a result of the pressures
bought on by the death of an older sister and living in a household with two baby brothers she could not communicate
with. Our lifestyle was completely different from anyone we knew and caused her to have peer problems and social
issues to contend with. We had to find a way to help her with the challenges of being an older sibling to two broth-
ers with autism and had two sons to learn about, work with and advocate for. We were blessed with the strength to
do it all and teachers, staff and a school that provided all of us with much needed education, training and support.
We became knowledgeable of ABA, TEACCH, and the Miller Method and even began working with basic American
Sign Language. Then while bad extended his research of herbal alternatives and diets (neither of our sons have ever
taken medication, no matter how many doctors recommended it), I took many lessons in patience and tolerance.
Now, let me add a little something to the mix right here. I am an avid believer that everything happens to us for a
reason and just about everything is a lesson in life for something we are put here by a Higher Power to do. We don't
always know why things happen, but given time, we do find out. Well, I found myself back in Florida, only this time
with bad, and we quickly became accustomed to the tremendous differences between Florida and New York. We
immediately contacted CARD and were blessed with Jennifer Nye Flanagan as our support specialist. She visited our
boys in school, came to our home and got to know each member of our family. We immediately bonded and became
the perfect support team for our boys--blending her vast knowledge of autism with our knowledge of our boys, and
we knew they were on their way to a successful future.





Once again I felt blessed and very thankful for
the "tests" that had been given to me, and there were
many more--too many and too extreme to write about
here. Anyhow, being the mother of children with autism
had given me a passion for all "special" children, and being
blessed with a partner whose gentle nature balanced out
our lives so well that the challenges seemed effortless,
it's no wonder that I wanted to share my peace of mind
with as many parents as possible. So four months after
moving to the area, realizing that there was no support
program for parents or siblings, I decided to start sup-
port groups at Maplewood Elementary, the school at-
tended by both my sons. Our principal, Carol Bard, was
very supportive and once again CARD (this time Cathy
Zenko) put me in touch with a mother who helped me to
put it all together and is by my side to this day. Parents
and siblings longed for a place to be with their peers for
much needed emotional support and just to share experi-
ences and know that they were not alone.
At about the same time the groups began, Jenni-
fer approached me with an application for the Florida
Partners in Policymaking program (a program funded by
the Florida Developmental Disabilities Council) and en-
couraged me to apply. I knew very little about Florida, let
alone the "Partners" program, but I followed her sugges-
tion, applied and was accepted. I committed myself to
one weekend per month for six months of extensive
training in everything from "soup to nuts" about the
disability movement and any and all issues that relate to
persons of all ages with disabilities of any kind. I gradu-
ated from "Partners" in November of 2002 and it was one
of the most incredible experiences I have ever had. The
only thing that the FDDC asked in return was that we
take what we learned back to our communities and put it
to use, giving them an update from time to time. Well,
you can believe I came home with a confidence like never
before and an eagerness to advocate for every child and
empower every parent that crossed my path, and Partners
in Policymaking had provided me with the tools and the
contacts to do just that.

I became actively involved with as many commit-
tees as possible that would assist me in my mission to
bring about awareness and make change: ESE Parent
Advisory Committee (where I met another CARD mom,
Amparo Perales, who works alongside me and is instrumen-
tal in my successes), Superintendent's Advisory Council,
the Marion Area Transition Team (MATT) and our School
Advisory Council (which I am proud to Chair with Mrs.
Perales as my Chair Elect this year). Then, I became an
active school volunteer and PTO member working hard
alongside parents of "typical" children forming bonds that
I hoped would bridge the gap between ESE and Regular
Education parents and students. I created 'The Foun-
tain', a newsletter that I put together each month during
the school year that is packed with information and
articles contributed by parents and siblings. The April
2002 issue was distributed to approximately 8,000 homes


by our ESE Department and it is our hope to raise funds
to enable us to place our newsletter in that many homes
on a regular basis.

By the end of the "Partners" program my support
group had become Parents Helping Parents of Florida, Inc.
(PHPF), a full-fledged organization that not only provides
emotional support to parents, but, through its partnership
with agencies and service providers gives direction to
valuable resources and services by educating parents
about available services thus eliminating their frustration
as they look for assistance for their "special needs"
children. PHPF also provides trained parent advocates to
assist parents with the educational system and any issues
relating to a child with a disability. We have formed a
working relationship with our school district that is
bringing about positive change in our educational system
and as a part of MATT we are working diligently to help
make the process of transitioning students from high
school to the workforce easier and more successful.
Last, but by no means least, I am working on a website
that will be available on the world wide web this coming
June, making PHPF accessible to parents every day of the
year.
PHPF continues to grow and I have surrounded
myself with hardworking, dedicated parents who share my
passion, not just for our own children with autism, but for
any child with a special quality, need or behavior. As for
me, I no longer ask myself "what is this thing that has my
children locked away and has left me without a key?" I
now know that this "thing" has opened a door for me,
giving me reason to celebrate the smallest accomplish-
ments as the greatest achievements and has given my life
purpose.

Parents Helping Parents of Florida, Inc. (PHPF)
P.O. Box 11072
Ocala, FL 34473-1072
Phone: (352) 347-8140
Fax: (352) 347-6501
E-Mail: PHPF2002@yahoo.com









Since the last newsletter, we have had two sibshops and are currently planning the next one.
On March 29th, 5 siblings (ages 12-16) joined us for an entertaining
sibshop at Skate Station. Here we enjoyed many silly games. One
game involved testing our senses and gaining a new perspective about
how our brothers and sisters might sense the world differently. We
soon discovered that some of us might need skating lessons, but we all
had a blast. ..

On May 31st, 5 siblings (ages
8-12) attended a sibshop at
Victory Riding Stables in
Alachua. We had a great time riding horses, going on a hayride, and playing
games. It was very hot that day and one of the favorites for all was water
balloon volleyball. Thanks to the stables for hosting this event and giving
us a generous discount. Also, a big thanks to the Gainesville Boston Market
who kindly donated boxed lunches for all participants and helpers.
The next sibshop will be held on September 13, 2003 for 5-8 year olds.
As always if you have any suggestions, don't hesitate to contact me.
Thanks! Karin Marsh 352/392-4171

The Centers for Autism and Related Disabilities and
the Florida Outreach Project for Individuals with Deaf-Blindness
are excited to announce their
11TH ANNUAL STATEWIbE CONFERENCE
"Moving Ahead: From Promise to Practice"
Supporting the Needs of People with Autism Spectrum Disorder,
Deaf-Blindness, or Cognitive Disabilities with a Vision or Hearing Loss
Pre-Conference Teacher bay & Pre-Conference Focusing on Adult Services
January 23rd, 2004


Conference Registration Fee
$95.00 before 12/19/2003
$120.00 after 12/19/2003
If you have any questions about the
conference, please contact:
bonna Casella -813-974-6168 or
dcasella@fmhi.usf.edu or
Alessandra Carrieri -305-284-5263
or acarrieri@miami.edu


Eleventh Annual CARD Conference
January 24th & 25th, 2004


Keynote Speakers:
Temple Grandin, Ph.b.
Karen Erickson, Ph.b.
Wendy Stone, Ph.b.
Serena Wieder, Ph.b.


Hilton Miami Airport
5101 Blue Lagoon Drive
Miami, FL 33126
1-800-HILTONS / 305-262-1000
Fax: 305-267-0038
When calling to make reservations,
remember to ask for the CARD
Conference. Room rate is
$125 per night for single/double.


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